February 8, 2010 by Jen.

We’re home!! More details tomorrow, once we have a chance to get ourselves organized a bit. Juliana is happy and we are thrilled.

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January 29, 2010 by Jason.

Sorry, the filter that uses a simple math problem is back up. We are getting comment spam in old posts.

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January 15, 2010 by Jason.

In football, before the end of the half, is what is called the “two-minute warning”. This is a mandatory timeout that lets both teams make plans for the remaining time left in the first half or in the game itself. We had our “two-minute warning” today.

We met with Dr. Viscardi, one of the neonatologist attendings, to talk about plans for taking Juliana home. We went over the steps that she needs to take to come home. We will detail the steps more later, but we are very excited.

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December 4, 2009 by Jason.

Juliana is off the ventilator! We called in this morning and they have moved her to a bi-phasic CPAP mask for breathing. She is extubated and doing well. The bi-phasic mask helps push air into her lungs, but she is doing the work. The damage done to her lungs by being ventilated for so long stops and she can begin recovering lung function. Another benefit is that we will soon be able to hear her cry for the first time. We have seen her face red and mad before, but with intubation, it is completely silent. Soon, she will be able to make some noise! We’ll be heading to the hospital soon to see her.

Update: The nurses took a picture of her before they put the mask on and gave it to us. It is our first look at her face unencumbered.
She had an x-ray earlier today of her chest and her lungs look very clear. The orthopedist also stopped by and let us know that her femur should be completely healed in 2 weeks time. We will be spending most of the evening visiting with her. I’m on schedule to kangaroo tomorrow. Good stuff!

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November 25, 2009 by Jen.

So many things to be thankful for this year . . .

–a beautiful, precious, perfect little miracle baby Juliana
–the most wonderful and supportive husband ever
–amazing family members who regularly call, comment, and drive long distances to visit us and take care of us: we love you all
–our second family, the Howes, who are always here for us
–loving friends who constantly call, text, and visit. Alita, Jamie, Meredith, Nikki, and Cara: your continual encouragement gives me strength. Stephen and Robby, thanks for being you.
–friends from all over (even Ireland–thanks Gleesons, Sarah, Lesa, Maire, Tom, Claire, etc.) who have uplifted us with their kind words, thoughts, and prayers. Thanks Monica, Susan, and others for sharing your experiences. There are so many of you, but each of you has touched us with your support.
–our supportive and exceptionally generous church and school community: you have let us know that we are not alone, even when family is far away. The food and house cleaning has been such a blessing to us. Thanks especially to Sheri, Louann, and Sergio for constantly checking to see what we need. Thanks also to Jesse and Tarah for being willing to do whatever we need while we are away from the house.
–everyone at UltraCamp who has been working extra hard to make it possible for Jason to be with me and Juliana through all this. Dan, Adam, Alex, and Dave: you guys are awesome!
–my dear students who keep sending me cards and emails. I miss you a lot, and I appreciate your notes.
–an amazing medical team here at the University of Maryland. The doctors have been great and the NICU nurses are wonderful, especially Deborah, Renee, Rachel, Jenny, Michelle, Jen, Jane, Julie, and Iris. Cheryl has also been especially helpful to me personally. We love you all!
–a loving God who hears and answers prayers and continues to bless us, even when we don’t always understand His answers and blessings
–the hope of heaven and the reunion with our precious children Eden and Zoe, as well as other dear loved ones

Thanksgiving will never be the same for us. We’re thankful for so many things, and the presence of our miracle baby has given us an entirely new perspective on life. Thanks to everyone who has helped us (and continues to help us) cope with this experience.

Lots of love,
Jen

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November 12, 2009 by Jen.

Hey Everyone,

You all have been so wonderful, and so many of you have asked if there is anything you can do for us. Generally the answer is that the best thing you can do for us and Juliana at this point is to continue praying as you have been. Your support is very special and meaningful to us. However, I thought I would write a post detailing some of the wonderful non-profit organizations from which we have benefited, and if you have an opportunity in the future to give money or service, these are some that are now very dear to us.

The Ronald McDonald House: serving families with seriously ill children. We stay at this very modern, well-managed facility in Baltimore for several nights a week for a small nightly fee. We have our own room, space in a very nice kitchen, access to laundry and other useful amenities. This organization, established by McDonalds, is such a blessing for families like ours who have to drive long distances to the hospitals where their children are being cared for.

The March of Dimes: conducts research about premature births, facilitates community services and advocacy to save premature babies’ lives.

Now I Lay Me Down to Sleep: the non-profit photography company that has made it their mission to reach out to parents of seriously ill children and take high-quality, professional photographs of the child in the hospital. They came to take photos of Zoe, and we will receive them in a few weeks, free, to use as we choose. A beautiful ministry.

The American Red Cross: blood donation. Although the babies haven’t used a lot of blood compared to an adult, they each received several transfusions, and Juliana will continue to get blood products for weeks. Giving blood is easy, free, and important. The Red Cross saves lives.

If you ever have the opportunity to give to or volunteer at any of these organizations, you will be contributing to a wonderful ministry. We are so grateful for the help that we have received from each of these services.

Posted in Announcement | 7 Comments »

November 1, 2009 by Jen.

Hello Everyone. This is Jen. I haven’t been on the internet much, but Jason reads me every comment from each of you. We may never have an opportunity to reply individually to each comment, but I wanted you to know that you all have given us so much encouragement. Your prayers and support mean so much to us, and we feel uplifted with every comment we read. We have just been overwhelmed with the support from our family who has been here to help us through this, our dear friends who have traveled long distances to be here, and our church/school community for the outpouring of love and food and housecleaning, etc. Those of you at a distance have covered us with your prayers and I believe that God is answering them.

To Jennifer C and all my students: your love and prayers and cards mean so much to me. I miss you each. Keep praying for the babies!

To Monica and others who have shared your personal stories: thank you for the encouragement. You have given us hope and we’re clinging to it.

Although we are devastated by the loss of Eden, we continue to praise God for each day of life that He gives Juliana and Zoe. They are truly miracle babies and it is our wish that their lives will be continued testaments to the power and love of God. Please continue to uplift them in your prayers. I know that He has big plans for their lives. I can’t wait for the time when all of you can meet them and hold them.

You all have been an example to us of the true meaning of church. Even though we are separated by so many miles, we are all a part of a beautiful community of fellowship and prayer. We humbly thank you for the love and friendship you’ve shown us. We are eternally grateful and we love you all.

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October 30, 2009 by Jason.

We took these pictures yesterday. Please just view them here and not repost them to FB, email, etc. Click for bigger pictures.

This is Juliana.

This is Zoe.

Posted in Announcement | 19 Comments »

October 28, 2009 by Jason.

Our 3 girls were born on October 25, 2009 by emergency C-section after 24 weeks and 4 days of gestation.

4:22 PM - Juliana Skye 1 lb. 5 oz.

4:23 PM - Zoe Janine 1 lb. 2.5 oz.

4:24 PM - Eden Aurelia 1 lb. 3 oz.

Eden was born with a tracheoesophageal fistula and sustained a catastrophic brain hemorrhage the next morning. She passed away in our arms October 26 at 10:40 p.m.

Posted in Announcement | 16 Comments »

November 6, 2008 by Jen.

Yes folks, it’s time! We bought our lovely WRX nearly 6 years ago. Since then it has served us so well! We love our zippy car (and so do the others who get to drive it–those of you who have, you are special, rare people and should count yourselves blessed). Today at 2:58 p.m. on my way into town (on Mt. Aetna Road by the golf course and Black Rock Estates), the car hit 100,000 miles. I video-recorded the big event, and also took pictures.

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