Jen was able to kangaroo with Juliana for an hour and a half this afternoon. She was very comfortable and had great sats the entire time. They were able to wean her oxygen down to 24%. She still has her CPAP mask on, but pressures may be weaned tomorrow to 4. Her fentanyl drip is on the lowest possible level, so she has another day or so at most and then her line gets taken out. Jen and I left early for a holiday party at the Ronald McDonald house this afternoon. The chairman and his family are making a Greek feast for all the families. We are heading all the way home afterwards to take care of a few things and a very lonely kitty.
We visited with Juliana for about an hour this afternoon before we headed off to the football game. She is doing well on the CPAP and with her feeds. They decided not to make any major changes to her over the weekend. We expect that her PICC line will probably come out early this week. Her TPN is done and her fentanyl is almost completely weaned. She was stretching all of her limbs out, even her right leg which freaks me out every time. It must be healing up well for her to move it around so much. The Ravens game was awesome and we had a great time. We bundled up like we were heading onto the ski slopes in Colorado. We stayed warm!
Jen and I slept in this morning and then waded through the snow to the hospital. Her feeds have increased to 7 ml per hour and she is holding steady on her CPAP. They thought her lungs sounded a little wet so they gave her some Lasik last night. She peed 100 ml in two diapers, which is something like 3 ounces of fluid! Consequently, she lost some weight since yesterday. We were hoping she would hit 3 lbs by Christmas but I’m not sure that will happen now.
Today would have been the start of the girls’ 32nd week of gestation. It also is the average birth week for triplets. Juliana is 7-1/2 weeks old today.Her pressure has fluctuated between 4 and 5 on the CPAP. She is staying on it for now. Her feeds are up to 5 ml per hour. She had two dirty diapers today. While Jen was washing her face after changing her, she decided to stool all over her open diaper. We are hoping the Orthopedist fits her custom splint soon so we can hold her again. It’s been a pretty good day.
Steady progress today. Her CPAP pressure has been reduced to 4, the lowest level. Her feeds have been increased to 5 ml per hour and she is doing well with it. She stooled on her own at noon. She looks like a comfortable happy baby. Jen and I are excited because someone donated Ravens tickets to the Ronald McDonald house for this Sunday’s game. We will be sitting on the 10-yard line, 6th row. Awesome!
Juliana had a visit from the Orthopedist and the eye specialist this morning. Her leg is looking good and should be completely healed in a week or so. Her eye test results were good as well. She has Zone 2 Stage 0 ROP. That just means her eyes are immature and they see no problems yet. They will redo the test in two weeks. Her CPAP pressure was turned down to 5 and her feeds moved up to 4 ml per hour. She looks so comfortable in her isolette that I get to thinking she is enjoying this like a vacation. Unlimited pampering and all she can drink!
We brought the Herr family to Baltimore to visit with Juliana. She is doing very well today on her CPAP. During her cares, we removed her mask and she was happy to just breathe room air at 100% saturation. Her next step would be a little nose tube, but her nose is too small for any of the tubes! We’ll see what happens this week. Her leg looks really great and we are looking forward to a good x-ray tomorrow and a good report from the orthopedist. All in all, a good day!
Juliana graduated to the CPAP this morning. She now has a constant pressure of air with no “breaths” in-between to prompt her. It is the same concept as an adult sufferer of sleep apnea would have; the constant air triggers your autonomic system to keep breathing. Her feeds have also been increased from 2 ml to 3 ml. The best news today is that her right leg looks just like her left leg. All the swelling is gone and we hope that means it is healing up well.
Update: We talked with the night nurse tonight and Juliana is doing great! She had another stool at shift change which makes two in one day! She continues to be digesting all of her milk that they give her. Best of all, she is rock solid on her CPAP on room air (21% oxygen) with no desaturation or bradycardia episodes. Can’t wait to see her tomorrow!
Juliana’s leg looks less swollen today. The orthopedist examined her and readjusted her splint. The team is working on pain management to make sure it doesn’t bother her much. Her periods of bradying are over and she has a good heart rate, breathing rate, and pulse-ox. They turned her rate down to 10, and expect she will be on the continuous “CPAP” starting tomorrow. Her feeds were also ramped up to 2 ml per hour and it is all going down for now. That may seem like a large jump, but remember there are 33.6 ml per ounce! It takes her almost all day to drink one ounce. They will probably increase by 1 ml an hour each day until she goes on normal feeds. Jen and I are picking up the Herrs from the airport shortlyand heading home for the weekend. We will make some day trips down to Baltimore while they are here.
Juliana made it through the night well and continues to use the breathing mask. Jen is holding her right now and she is occasionally making little cries and even sneezed once. She received her last steroid dose this morning. The steroids have depressed her heart rate some so she is hovering between 95 and 130. Under 100 is technically a bradycardia so the alarms are going off frequently. They may turn the lower alarm down to 90 so it isn’t constantly beeping. Her oxygenation is 97-100 and her lungs are clear with no apnea. We are having an enjoyable time even with the klaxons. Her feeds have been ramped up from 0.4 ml per hour to 0.8 ml per hour! They are very happy with her progress and I’m looking forward to her rapid growth.
Update: Her leg looks swollen compared to yesterday. The fellow checked it out and ruled out holding her until her leg looks better. My guess is Monday since that is when Ortho will x-ray and check her progress.