12/17/09 Update and More Pics

When we walked in to see Juliana today the nurse and resident were beaming. (We really appreciate how much the doctors and nurses get excited over our baby’s milestones. They are all very supportive of us!) Juliana had just been moved from CPAP to nasal cannula. This little oxygen tube has prongs that go into her nostrils. However, they had to cut off the ends of the prongs because her nose is still so small. She had a few bradycardias throughout the day and some desaturations, but they think she will do okay with this new oxygen delivery system. She may switch back and forth between the CPAP and nasal cannula for the next few days. We’ll see. Her Fentanyl is slowly decreasing and her feeds have gone up to 6 ml/hour now, with additional calories. Her TPN (the intravenous nutrients that we call “Baby Gatorade”) will be discontinued tonight and she will begin to receive all of her nutrition from the breast milk. That’s a big step! She may also have her PICC line removed tomorrow, if she continues to do well with her feeds. She seems to be gaining about an ounce every day or so; the breast milk is really doing its work. She now weighs 2 lb, 9 oz.

We also continue to be very excited over her stools. She had two more today without suppository help. It’s great to know that her stomach and intestines are processing everything properly.

I (Jen) got to hold Juliana for about two hours, during which time she looked around wide-eyed and then settled in for a long nap. She seemed to be very comfortable, and we both really enjoyed the snuggle time. Near the end of her nap the Howes got to come in and see her for a bit, so that was a nice end to the day.

Juliana likes to open her eyes and look around (often while waving her arms), especially during her cares when the lights are bright. Here are some photos of her awake time today and yesterday. (Hint: click on the small photos to view larger size.)

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And a very special thanks to our visiting photographer Stephen Herr for the following photos:

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18 thoughts on “12/17/09 Update and More Pics

  1. Jason and Jen: I am so excited for you both! The pictures are wonderful. We can now see her precious little face. God is giving you a wonderful Christmas, isn’t He? I continue to pray for you three many times of every day. God continue to bless you and love each other in His grace.

  2. Oh my word she is sooooo cute i can’t take it! but i’m glad she will be able to look back and see what a dork her father is from the very start! what is that face jason?

  3. So excited for Juliana and you – these are big milestones! The pictures are precious!

    Jen, there is a yahoo group called pumpmoms. It is a huge source of encouragement and information for moms who exclusively or part time pump.

  4. Oh, she is so P R E C I O U S ! ! ! ! ! I can’t stand it, I want to hold her, too! Awesome step to come off the CPAP and onto regular nasal cannula. WONDERFUL! And the feedings, and the poopies, and taking the PICC line out! What joyous news! Darling pictures! Thanks so much for all your updates. Love you ALL.

  5. Oh, what wonderful news. She is so very cute. I wish I could hold her. I’m still hoping for 3 lbs by Christmas day. Thank you so much for these pictures. Love to see her precious little face and those tiny hands. What a treasure she is! We love you, all three, and are praying for you.

  6. Seriously. We can’t take it. These pictures are too freakin’ adorable. I love the one where she’s reeeally stretching! Or is she asking for a hug? 🙂 An ounce a day is awesome! THANKS for the pictures!!!!!

  7. Outstanding photo spread! Best yet of her face. We’re excited about seeing all of you next week.

  8. I’ve been following the updates about Juliana for the last two months and I’m so excited when I hear about all the progress she has made. I was born at 30 weeks and 3 lbs so I know that with a lot of prayer, love, and care she can do it!

  9. Jason & Jen:

    What a great update and I just dearly love those pictures. Boy do they make me wish that I had a turn to hold that precious girl! We keep her in our nightly prayers as well as the ones during our weekly church service. May God bless you all this Christmas season!

  10. The pictures are wonderful. I know you can hardly leave her at the end of your visits. We are so happy that Juliana is doing so well. God bless you all.

  11. What beautiful pictures of a beautiful girl! Praise God that she is growing and developing so well! Merry Christmas!

  12. What a precious little miracle she is!!!!!! She continues to do so well! The pictures of her so good, and my favorite one is of her stretching.:) We continue to keep Juliana in our prayers everyday.

  13. What a perfect way to start Sabbath, seeing the goodness of God in the miracle of Juliana!
    Her steady progress is the best Christmas for you.

  14. What fun pictures. We appreciate the updates, keep them coming! Have a blessed sabbath.

  15. Oh Jen and Jason, Juliana is absolutely adorable! she’s so beautiful! Thankyou for the updates – hugs for all of you 🙂

  16. With this kind of progress, she’ll be doing back flips and jumping jacks pretty soon! We’re so glad we could come visit, even if it was only for a couple days.

  17. Juliana is just too cute! Thank you for sharing her with us. Love and Hugs to all three of you.

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