When we walked in to see Juliana today the nurse and resident were beaming. (We really appreciate how much the doctors and nurses get excited over our baby’s milestones. They are all very supportive of us!) Juliana had just been moved from CPAP to nasal cannula. This little oxygen tube has prongs that go into her nostrils. However, they had to cut off the ends of the prongs because her nose is still so small. She had a few bradycardias throughout the day and some desaturations, but they think she will do okay with this new oxygen delivery system. She may switch back and forth between the CPAP and nasal cannula for the next few days. We’ll see. Her Fentanyl is slowly decreasing and her feeds have gone up to 6 ml/hour now, with additional calories. Her TPN (the intravenous nutrients that we call “Baby Gatorade”) will be discontinued tonight and she will begin to receive all of her nutrition from the breast milk. That’s a big step! She may also have her PICC line removed tomorrow, if she continues to do well with her feeds. She seems to be gaining about an ounce every day or so; the breast milk is really doing its work. She now weighs 2 lb, 9 oz.
We also continue to be very excited over her stools. She had two more today without suppository help. It’s great to know that her stomach and intestines are processing everything properly.
I (Jen) got to hold Juliana for about two hours, during which time she looked around wide-eyed and then settled in for a long nap. She seemed to be very comfortable, and we both really enjoyed the snuggle time. Near the end of her nap the Howes got to come in and see her for a bit, so that was a nice end to the day.
Juliana likes to open her eyes and look around (often while waving her arms), especially during her cares when the lights are bright. Here are some photos of her awake time today and yesterday. (Hint: click on the small photos to view larger size.)
And a very special thanks to our visiting photographer Stephen Herr for the following photos: