We chatted with Juliana’s nurse Rachel today for an update as we spent today all the way home working on a few errands. Her rate has been turned down to 18 as they continue the weaning process. The plan is to start her on a course of steroids starting tonight so that she will be ready to be extubated sometime on Thursday. Hopefully, she will do well with that. She is still aspirating a lot of her feeds, so they have put the continuous feed on hold for a little while to give her a rest. The eye doctor stopped by today and checked her out for ROP, which is Retinopathy of Prematurity. Her results were “immature” so they will be checking again next week. I guess that is another way to say inconclusive because she is so small. There is a strong chance because of her early birth that she will have some sort of ROP issue, but we’ll see what cards we are dealt. Here is a picture of her wide awake from yesterday:

 Little Miss

23 thoughts on “12/08/09

  1. Oh, hello Juliana! I miss you! I’m the one who sings to you all the time. That is, when I am with you. I didn’t get to hear you last week, but hopefully next time I come up to see you I can hear you cry. Sleep well, my precious, and grow and grow. Jesus loves you and so do I! Love, Grammy

  2. A lovely, lovely little girl. I think preemies are the cutest, but I’m a little biased. 🙂 Love!

  3. Hi kids…oh she’s so beautiful!! And, I am asking our Father to totally heal her so that the Drs and nurses will say she is a miracle baby!! Stay faithful!

  4. What a beautiful little girl! I can’t get over how much bigger she looks in this picture! She’s so alert 🙂 We’re praying for you, little Juliana, and can’t wait to meet you one day!

  5. She is so beautiful! What a great picture of her little eyes. I can already tell that she’s meant for big things in this world. Her eyes are full of fire, vigor, and passion for life!

  6. What a BEAUTIFUL girl! And a great picture. Our little girl’s eye results came back as “immature” until well after she came home. Many tests were done to keep watch and ensure the development of her eyes were progressing as they should and she was given the clear a few months after she came home. We will be praying the steroids do their job and Juliana rests before the big workout of her lungs on Thursday. God bless you all!

  7. Precious little girl!! She’s a beautiful little preemie! Our daughter had weekly eye exams for months. Not fun, but at least it’s quick. Praying her eyes develop without problems. So many people are praying for her!!

  8. She’s so beautiful! Thank you for sharing. It’s wonderful to hear she’s making such improvements.
    We read your note about the choices of names for all three of your children…very unique indeed and definitely beautiful. We continue to pray for you and your family…God is good.

  9. What a beautiful and precious baby girl! I love the picture! We continue to keep that sweet baby in our prayers.

  10. Juliana you’ve grown so much and you are a wonderful precious little girl. I continue to pray for you.

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