11/21/09

Juliana is having a good day today. Her blood-gas has been excellent and they will be turning her rate down slightly from her current setting of 48. Her oxygen level has hovered in the high 20’s to low 30’s, so she is really close to room air which is 21% oxygen. Last night, they took out her arterial line in her right arm. If you look at the picture below, you can see the white gauze wrapped around that arm to keep it in place. All of that is gone now, so her arm is free. They noticed that her fingers didn’t have that rosy pink color they like, so by removing the line, better blood flow can get to her little fingers. Her fingers are much pinker today. In rounds, they discussed her PDA again. The plan right now is to give her an echo on Monday morning to see the PDA’s current size. We will have a meeting with the cardiologist later on Monday to decide what to do. Our sense is that they will recommend performing the ductus surgery on Tuesday. We are okay with that.

12 thoughts on “11/21/09

  1. To elaborate on the statement in Jason’s post: “we are okay with that” . . . We know that surgery is probably the best thing for her and will help her stats improve in many ways. And we know that it is a very common procedure and the doctors don’t anticipate complications. But, even knowing all that can’t keep Jen from being terrified. Please pray for peace of mind for both of us and total healing for Juliana. Any kind of surgery on a 1 lb baby is scary. Thanks everyone for your support!

  2. We will be praying for Juliana. She is approaching her first month birthday. Bless her heart, she is a real fighter. Are they still giving her a few drops of milk? Is she tolerating it well?

  3. Dear Jason & Jen,

    We have been having our church family pray each Sabbath for Juliana and I have asked several friends for special prayer for her knowing that there was a strong possibility for surgery. Hang in there and know that we will be praying for God to give you courage and peace in the tough decisions that need to be made. We love you all so very much!

  4. I will also pray for all her medical team,to give them wisdom and skill to do the best for Juliana, and of course peace for you.

  5. Lots of prayers are going up on your behalf. God knows our fears and He knows the desires of our heart. I thank Him many times everyday for taking care of all your needs and especially for giving Juliana the strength to endure all that she is asked to do. God knows her limits and I am confident that He is guiding all the caretakers and decision makers concerning what is best for this precious little girl. Claim God’s peace and it will be yours! He faithful and very generous with His love. Missing all of you and sending you my love ~

  6. Thanks for the pictures! Prayers are sent up each day for your family and Julianna progress. God bless.

  7. Still saying SO MANY prayers for you all!

    Thanks so much for the faithful updates and for the beautiful pictures!

  8. I just wanted you to know that my 2 yr old little girl loves to pray for Juliana and does so multiple times nearly everyday. You don’t know us, but I was friends with Jen’s sister Karen at Southern. May God continue to carry you through the tough times and fill your hearts with joy through this precious little life.

  9. Dear Jen and Jason:
    I’ve been following the saga from Colombia, where I’m teaching a class on mission for pastors. May God’s grace sustain you and strengthen little Juliana. May God’s peace be with all of you. My prayers are with you!

  10. Oh, Jen, we understand how terrifying the prospect of surgery must be after all you’ve been through. We will pray for God’s peace to surround you and Jason like a warm and conforting blanket and for angels to guide the surgeon’s hands. God will hold your precious little one in His protective hands. Please let us know the exact time of the surgery so we can pray extra during that time.

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